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A positive step forward for Dystonia Treatment

Wednesday, April 6, 2005

Sheffield Heeley MP Meg Munn accompanied Intake resident Keith Hall in London yesterday for a meeting with the Health Minister Stephen Ladyman. The meeting was to discuss the treatment for Dystonia known as Deep Brain Stimulation (DBS) being made available on the NHS.


Mr Hall suffers from Dystonia which is a neurological disorder that causes muscles in the body to pull or spasm and affects more than 38,000 people in the UK. These involuntary contractions cause twisting or repetitive movements, or force the body into unusual postures. DBS is seen as one of the best treatments in controlling the condition.


Meg said;


“This was a very positive meeting. Dr. Ladyman was able to see and hear about the difference that DBS has made to Keith’s life. I am delighted that he will be raising the issue with the National Institute for Clinical Excellence (NICE). This is the first step to ensuring that all those who would benefit from the treatment can receive it.”


Mr Hall said of the meeting;


“It was a huge step forward for Dystonia suffers. Dr Ladyman listened to our case for making DBS available on the NHS and said he would write to NICE to raise the issue with them.”


The photo shows Keith Hall, Philip Eckstein from the Dystonia Society and Meg about to go in the Ministry of Health.

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